Benign Fasciculation Syndrome (BFS) and Mycoplasma (Part II)

Just like BFS, mycoplasma symptoms are unique for each person. Mycoplasma symptoms can be complicated when a person has an infection due to multiple forms of mycoplasma. Mycoplasma infections can also be complicated by the number of internal organs the infection infiltrates. The same can happen if a person with BFS has multiple triggers or causes – they can get very complicated symptoms. If some BFS cases are caused by mycoplasma infections, then this gives credence to the argument that BFS is an autoimmune disorder. Is it feasibile mycoplasma infections can lead to BFS symptoms? Absolutely, in fact it is the most sensible argument of a catalyst working inside our bodies to transform a traumatic experience into actual symptoms. We know very little about mycoplasma and as more research comes forth, it may become more obvious of its role in BFS. If mycoplasma is shown to commonly coexist with ALS, MS, and fibromyalgia patients, then how hard can it be to accept that mycoplasma coexists with a high percentage of BFS sufferers. What’s worse mycoplasma can be masking chronic conditions that can be cured in BFS sufferers.

My wife had a mycoplasma infection that literally had her sick for months. Our doctor’s response was slow and he showed little urgency even though I thought she was dying. He took his time with referrals and took constant badgering to get referrals done and appointments set. Our doctor says he believes my wife when she says there is something wrong, but he said there is nothing he can do to expedite matters because most of her tests were normal. He showed no urgency even though she had lost 15% of her body mass over a four week period of time. Gradually my wife saw one specialist after another - gynecologist, gastroenterologist, rheumatologist, and so on over a 6 month period of time. She had numerous blood tests, but everything came back negative except the mycoplasma test. It was my wife’s own advocacy for her own health that pointed our reluctant doctor in the right direction. Her research led her to ask the physician to check for a mycoplasma bacteria and it was positive. Once she was put on an antibiotic she slowly began to improve. The doctor was also reluctant to give her an antibiotic prescription and was even more reluctant to give her a cycline based antibiotic – which works best for mycoplasma. Our doctor called the request a “Hail Mary” and seemed dumbfounded when she reported feeling better.

If a patient has no history of “crying wolf” then a doctor should show more urgency to help the patient. It is not acceptable to throw your arms up in the air and give up. Our doctor admitted his job was merely to treat symptoms and refer patients to specialists. That is a shame. Doctors seem to be reactive instead of proactive. Our doctor never consulted with his colleagues over my wife’s case.