tag:blogger.com,1999:blog-6889986006783300070.post5405650912755520019..comments2023-10-19T05:40:40.156-07:00Comments on The Theory of Mediocrity: The Misconceptions of Benign Fasciculation Syndrome (BFS)PT Bohanhttp://www.blogger.com/profile/10101195261695989996noreply@blogger.comBlogger347125tag:blogger.com,1999:blog-6889986006783300070.post-21755452348349965802020-07-21T18:12:40.533-07:002020-07-21T18:12:40.533-07:00Hello my name is Chloe Elizabeth I'm from USA...Hello my name is Chloe Elizabeth I'm from USA i want to testify of a great and powerful spell caster my husband left me and the kids for 2 weeks when i called him he didn't pick up when he came back home the 3rd week he told me he wanted a divorce i was so sad i cried all night he left again i was so lonely the next day i was searching for something online when i found a spell caster called Dr ogunsnya who have helped so many people with their problems so i contacted him with my problems he told me it will take 24hrs and my husband will be back to me i did every thing he told me to do and the next day my husband came back kneeling and begging he canceled the divorce we are now happy together Dr ogunsnya can help you too Email him at<br /><br />(drogunsnya@gmail.com)<br /><br />WhatsApp +2347064365391<br />Chloe Elizabethhttps://www.blogger.com/profile/16834198251249459991noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-71983623274440754352020-07-21T18:11:10.095-07:002020-07-21T18:11:10.095-07:00Hello my name is Chloe Elizabeth I'm from USA...Hello my name is Chloe Elizabeth I'm from USA i want to testify of a great and powerful spell caster my husband left me and the kids for 2 weeks when i called him he didn't pick up when he came back home the 3rd week he told me he wanted a divorce i was so sad i cried all night he left again i was so lonely the next day i was searching for something online when i found a spell caster called Dr ogunsnya who have helped so many people with their problems so i contacted him with my problems he told me it will take 24hrs and my husband will be back to me i did every thing he told me to do and the next day my husband came back kneeling and begging he canceled the divorce we are now happy together Dr ogunsnya can help you too Email him at<br /><br />(drogunsnya@gmail.com)<br /><br />WhatsApp +2347064365391<br />Chloe Elizabethhttps://www.blogger.com/profile/16834198251249459991noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-79329555436398130522020-07-20T02:50:29.450-07:002020-07-20T02:50:29.450-07:00I experience this. People in my family experience ...I experience this. People in my family experience a variety of symptoms. We've had DaTScans and the reveal only slight dopamine loss. Other than that MRIs and blood tests are fine. We do have a mitochonrdrial mutation, so that is thought to be a probable cause of chronic fatigue, cramping, muscle tensions. <br /><br />They diagnosed me with Parkinsons. However, when I take Parkinsons meds (dopaminergic), all of my symptoms get worse. The fasciculations began years ago, but have worsened around severe and traumatic life events.<br /><br />Did you ever get a DatScan or have your mitochondrial DNA examined?Chrishttps://www.blogger.com/profile/00968777604363405083noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-1641869015109678482020-07-08T13:35:10.935-07:002020-07-08T13:35:10.935-07:00Read about my story. I am currently writing a book...Read about my story. I am currently writing a book entitled “How a Neurological Disorder Changed my Life for the Better” and the proposal can be viewed at: https://publishizer.com/how-a-neurological-disorder-changed-my-life-for-the-better/. <br />PT Bohanhttps://www.blogger.com/profile/10101195261695989996noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-63108712145550258442020-04-19T15:49:12.306-07:002020-04-19T15:49:12.306-07:00Twitching and stress certainly like BFS. Loss of m...Twitching and stress certainly like BFS. Loss of muscle may be happening because you are not eating and probably exercising less. I would suggest getting checked out by a neurologist. Not because I think there is something wrong with you, but to give you peace of mind if everything comes back negative. This reduce your stress level and help you move forward with your life. PT Bohanhttps://www.blogger.com/profile/10101195261695989996noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-22305650948065577742020-03-22T08:43:29.187-07:002020-03-22T08:43:29.187-07:00About 1/1/2020 I started feeling odd walking downh...About 1/1/2020 I started feeling odd walking downhill but could walk for mile no problem, I am male in my mid-40s. Shortly there after I got muscle twitches all over my body. Also, I have taken benadryl for over a decade to help sleep. I have been very stressed out for the last few months and have eaten very little and have lost 20 lbs, mostly in my stomach. However, I have noticed what appears to be some loss of fat or muscle around the outside of both knees. Does this sound like bfs. I still have all of my strength. Thanks!<br />Anonymoushttps://www.blogger.com/profile/11750656530990547937noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-18280661541187653282020-01-21T02:27:23.269-08:002020-01-21T02:27:23.269-08:00I've had fasciculations since I was a kid, I&#...I've had fasciculations since I was a kid, I'm now in my 60s. The way they bother me is that on occasion they are strong enough to keep me from sleeping. Sometimes for days. So while they are benign, they really aren't at the same time. I wonder if this has been the case with anyone else and if so, how they coped.<br />Ronhttps://www.blogger.com/profile/05432118483044866174noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-1480658401633672122019-11-21T16:00:46.302-08:002019-11-21T16:00:46.302-08:00Everything points to BFS or some type of neuropath...Everything points to BFS or some type of neuropathy. There is not one symptom you mention that I do not have: numbness, pain, weakness, fatigue, elevated CK (Muscle enzymes), twitches etc. You definately have work on that anxiety. Anxiety or stress will wreak havoc on your life. If you control your stress you will mitigate symptoms. I know it is easier said than done. I do not recommend doing too much reading too much on the internet. It freaks everyone out. Sorry for the delayed response. PT Bohanhttps://www.blogger.com/profile/10101195261695989996noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-2409529637893227242019-11-21T15:54:00.472-08:002019-11-21T15:54:00.472-08:00My situation is very complicated and I going throu...My situation is very complicated and I going through more tests after 12 years. I think my case has been misdiagnosed and mismanaged for a long time. I hope to write a book about, but at this time I am not sure I have PNH (BFS or CFS). We'll see. PT Bohanhttps://www.blogger.com/profile/10101195261695989996noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-67808718142344804212019-11-21T15:51:10.032-08:002019-11-21T15:51:10.032-08:00BFS and PNH are definately linked to autoimmune di...BFS and PNH are definately linked to autoimmune disease. That said, cancer is a very common association for acquired symptoms, especially Thymoma. I think your Hashimoto syndrome is also connected with thyroid cancer. PT Bohanhttps://www.blogger.com/profile/10101195261695989996noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-54205479234862572302019-11-21T15:18:29.478-08:002019-11-21T15:18:29.478-08:00I am here. Sorry, but have been dealing with some ...I am here. Sorry, but have been dealing with some tough personal and family issues. PT Bohanhttps://www.blogger.com/profile/10101195261695989996noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-38138814497779900092019-11-21T15:16:28.270-08:002019-11-21T15:16:28.270-08:00You are welcome. I am sorry I have not been able t...You are welcome. I am sorry I have not been able to respond, but hope everything is working out for you. You have the right attitude. Never stop trying remedies.PT Bohanhttps://www.blogger.com/profile/10101195261695989996noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-76119098470302248882019-11-21T15:12:41.477-08:002019-11-21T15:12:41.477-08:00Sorry I have been out of pocket with family and pe...Sorry I have been out of pocket with family and personal issues. I hope to write a book on my story and research as well as how it fits in with exercise and competition. Please continue to use the thread and hopefully I will work through my problems and issues and get back to blogging. PT Bohanhttps://www.blogger.com/profile/10101195261695989996noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-55418326965831678272019-08-22T16:22:39.250-07:002019-08-22T16:22:39.250-07:00Hello, I am a usps letter carrier, and I walk 10-8...Hello, I am a usps letter carrier, and I walk 10-8 miles a day. But I don't just walk it, I speed walk and push myself hard everyday. I started having pain in lower legs and fatigue in arms around November 2018. In mid February I pulled my left calf severely, and noticed my left calf twitching. So of course I went right to the Internet. I must admit, I am a hypochondriac. I've been this way since I was little. I've been on stomach meds pretty much my whole life. So I worry about everything. So after Dr Google scared me, I called Dr to get appointment. Then my right calf started twitching. Started to get pain in thighs also. Then the twitches started in my abs, thigh, feet, thumbs, back, and shoulders. But only when I used them strenuously. They stay in my lower legs pretty much all the time, but sometimes I don't feel them. But I can see with a flash light. So in March,I was referred to neurologist, where I took strength, EMG/NCV/ blood test . All were negative, but had slightly high muscle cells in blood. He thought it might be elevated from my calf muscle that I injured. So I'm going back, to have another blood test, but I'm scared to go back. I worry day and night, can't sleep, or eat. He told me that I should not worry, and that he thinks it's Bfs. But worrying is making symptoms worse. My shoulders are burning off and on. My neck, middle of back also hurt. I get a weird numb feeling in my lower legs, and shoulders also. I'm highly stressed and feeling every pain or weird feeling I'm having. I'm constantly on my phone, reading anything that might help me calm down to no avail. I fear the worst, even after all the test. I really would like your thoughts on my situation. ThanksAnonymoushttps://www.blogger.com/profile/07454930516489020302noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-91240003111409535872019-05-06T17:27:41.558-07:002019-05-06T17:27:41.558-07:00PT how are you doing? Any updates on how your fa...PT how are you doing? Any updates on how your fasciculations are doing?Brianhttps://www.blogger.com/profile/03821964145785776918noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-49439833960295276652019-04-17T14:52:02.777-07:002019-04-17T14:52:02.777-07:00Mine started seven years ago when I had my thyroid...Mine started seven years ago when I had my thyroid removed for cancerous tumors. The mental stress + shock to my system kicked off a wicked bout of BFS that has lasted on and off ever since. <br /><br />To make matters more confusing, thyroid disregulation can cause many of the same symptoms as BFS ( twitching, neuropathy etc). <br /><br />Also I have Hashimoto's syndrome. I suspect there is a correlation between some types of BFS and auto-immune conditions.Anonymoushttps://www.blogger.com/profile/10668410933909201722noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-77754337167514521492019-03-21T07:07:23.649-07:002019-03-21T07:07:23.649-07:00I know this is old-ish at this point, but I though...I know this is old-ish at this point, but I thought your approach to this is a good one. BFS can definitely take a mental toll, especially if the individual is also afflicted with anxiety disorders. <br /><br />I'm nearly 2 years in, and still new expressions of the disease are manifesting. Recently my extremities have become prone to parasthesia, falling "asleep" very quickly. When this happens, the affected body part will begin to rapidly fasciculate. It looks very much like a limb of someone with ALS, though I know after 2 years and being only 26, this is BFS. Still, when an intense new sensation like that happens, I get anxious for a little while before I'm able to rationalize it as just more BFS weirdness.Anonymoushttps://www.blogger.com/profile/16996094704690468157noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-19462578862136168262019-03-10T14:03:53.555-07:002019-03-10T14:03:53.555-07:00I have BFS in my calves. I've had it for 12 ye...I have BFS in my calves. I've had it for 12 years now. I want to kill myself. I'm almost done with it. Anyway see ya. Anonymoushttps://www.blogger.com/profile/02046785912928617970noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-22533600273205186012019-02-26T13:00:18.888-08:002019-02-26T13:00:18.888-08:00PT Bohan- are you still out there?PT Bohan- are you still out there?Bhttps://www.blogger.com/profile/10204214503825411866noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-22300886502070421802019-02-05T12:52:13.695-08:002019-02-05T12:52:13.695-08:00Hi just wondering if this thread is still active ?...Hi just wondering if this thread is still active ? Snowmanhttps://www.blogger.com/profile/11607857266183734883noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-45343541240621007832018-11-29T01:49:06.215-08:002018-11-29T01:49:06.215-08:00I am a 71 year old female, I was diagnosed of Amyo...I am a 71 year old female, I was diagnosed of Amyotrophic lateral sclerosis (ALS) in 2015 , my symptoms started out with muscle weakness, difficulty speaking, fatigue , double vision, difficulty swallowing and anxiety. I was unable to go back to work, I tried Riluzole (Rilutek) for about a year. Tried every shot available, but nothing worked.My ALS Disease got significantly worse and unbearable because of my cognitive thinking. In 2017, I started on ALS Herbal formula from Natural Herbal Gardens, the treatment worked incredibly for my ALS condition. I used the Natural ALS Herbal formula for a total time period of 3 months, it totally reversed my ALS. I had a total decline of all symptoms including muscle spasms, difficulty swallowing, drooling and others. Sometimes, i totally forget i ever had ALS. Visit Natural Herbal Gardens web-site ww w. naturalherbalgardens. com. I am very pleased with this treatment. I eat well, sleep well and exercise regularly. My attitude is extremely positive.Anonymoushttps://www.blogger.com/profile/00968372146086229220noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-62579716581753524172018-11-15T15:14:55.019-08:002018-11-15T15:14:55.019-08:00Hello! I understand this thread hasn’t had a post ...Hello! I understand this thread hasn’t had a post since 2015 but I’m hoping I could get help. I’m a 27 year old male and these twitches started May 9th, 2018. My twitching story started with a bout with severe health anxiety. After the health anxiety subsided a couple days later my triceps started twitching all night and then the twitching progressed to other parts of my body at random. When this all started, the twitching was severe and couldn’t be calmed no matter how much I tried to stop them. Over the past 3 months they haven’t been as frequent but still occur daily. My question is do you think if stress is managed for a decent period of time(1 year) I could be fasciculation free? I’m only asking because they have calmed down since inception of this rediculous syndrome that has caused so much fear. Thank you so much!Derekhttps://www.blogger.com/profile/08129182462769647781noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-36497403470060916592018-10-30T11:27:32.948-07:002018-10-30T11:27:32.948-07:00Hello,
I'm glad I found this website also. I...Hello,<br /><br />I'm glad I found this website also. I've been living with BFS for ten years now and it has recently gotten worse. I started seeing a new neurologist who did a full neuro workup on me (EMG, EEG, Nerve Conduction, and MRI), all exams came back normal with the exception of a slightly pinched nerve in my lower back. It's disappointing that the medical community still pretty much ignores it. Just because BFS isn't terminal doesn't mean it doesn't have serious effects on our well-being. Mineral supplements used to be helpful (I take magnesium, calcium, zinc, potassium, turmeric curcumin, gingko biloba, spirulina, and fish oil), but they don't seem to be as effective these days in minimizing the twitching. I also regularly take epsom salt baths, which are helpful in calming me down -- not so much for the twitches though. I don't drink as much water as I should, so I'm working on that. Especially with electrolyte enhanced waters (I'm SO glad they exist now so that I don't have to keep chugging gatorades for electrolytes). At this point, I'm ready to even try accupuncture. Whatever will help in keeping both my twitches and my anxiety at bay. I've also tried CBD oil to see if it would help. <br /><br />Both my father and older brother have MS, so I've made sure I ruled that out. I've also sought out support in such communities and spaces like this one with other people who are living/thriving/suffering with these annoying muscle twitches as well. I'd also like to help continue raising awareness. I wish the medical community would continue to do research (thank you for yours Patrick, it's helpful!)Lady Jhttps://www.blogger.com/profile/12161387275603417735noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-66191745862036554852018-09-03T04:29:12.513-07:002018-09-03T04:29:12.513-07:00Home remedies and Herbal Treatment for Benign Ess...Home remedies and <strong> <a href="https://www.naturalherbsclinic.com/Benign-Essential-Tremor.php/" rel="nofollow">Herbal Treatment for Benign Essential Tremor</a> </strong> that are believed to have helpful results for treatment Arnica oil, Skull Cap, Passionflower, Helichrysum Oil, Cinnamon Oil and so on. These Herbs for Benign Essential Tremor contain energetic ingredients that get better the functioning of the nervous system.Natural Herbs Clinichttps://www.blogger.com/profile/07400273781199204794noreply@blogger.comtag:blogger.com,1999:blog-6889986006783300070.post-41937360415264864522018-07-13T07:56:01.076-07:002018-07-13T07:56:01.076-07:00Hi PT Bohan, this is interesting.
Thanks! Keep it...Hi PT Bohan, this is interesting. <br />Thanks! Keep it coming.<br /><br /><a href="https://khohealth.com/bicep-stretches/" rel="nofollow">Bicep Stretches</a>Ahne SDhttps://www.blogger.com/profile/03661027052350232164noreply@blogger.com